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Mental Health Support

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DebJ

(7,699 posts)
Sun Aug 23, 2015, 12:23 AM Aug 2015

Is removing all meds a common hospital experience, or does this hospital have issues [View all]

that I should address in a letter to a number of people in administration? Or to who? I don't even know. It is a non-profit public hospital.

Is it common practice to remove all medications from a patient who enters the Behavioral Health units at hospitals upon their
arrival? This is the third time my son has gone into the hospital in the last three years, and every time he gets zilch meds for
about 48 hours, which further destabilizes him. I called about that today, and I was told "Oh for some reason the medication order didn't make it to the pharmacy until today" He went in Thursday afternoon, and had not been given his trileptal, or his guanfacine (ADHD and high blood pressure) until late Saturday afternoon, nor allowed evem any klonazepam until late Friday evening. when at least they gave him that. (I would have to have klonazepam if I was in there, or I'd have a heart attack myself.) After I got off the phone today, I remembered they gave me the same song and dance last year : "Oops somehow the order for medication didn't go the pharmacy the next morning" . Might have done so the year before, too, a third time for this; but that one I honestly don't remember...it was too traumatic as he had not been in the hospital for 13 years after his first truly hideous and frankly abusive experience at Sheppard Pratt in Baltimore. Is this cirremt hospital incompetent, or lying to me because this is a SOP?

The issue this time is quite serious. After removing all of his meds which have had him really well stable the past year, better than ever, but just a touch of mania that was ramping a bit too high so he checked himself in at his serious girl friend's advice, they have now not only destabilized him, but they gave him an SSRI. I called and spoke to the nurse this morning, who spoke to the doctor, and by 8pm the doc was still working but hadn't filed paperwork to change the meds yet and she didn't know his determination as yet. I told them to watch my son, because he actually could become dangerous. I told her that the hospitals actions could easily trigger severe mania now, and there is a statistical correlation where severe manic attacks are followed by a higher likelihood of more frequent future severe attacks, and MORE severe. I said you may have permanently damaged my son's brain.

IMHO, having lived with this now since he first had behavioral difficulties at age 3 (after a sexual assault), he has two trigger issues right now, stressful situations, and one is to come to a final resolution Monday...but this 'resolution' has been scheduled 6 times in the past year so he's very anxious now...will this be the end, or just another interminable delay? The OCD starts working on his anxiety; he can't take SSRIs for OCD and apparently there still is nothing else for OCD. So the OCD ramps up the anxiety, and the whole ball of wax starts rolling, until medical intervention is needed. But he'd been doing so very well for so long, he was afraid to be honest with his psychiatrist. He was afraid of a med tweak, and finally, after 3 weeks of issues, he decided to check in.

My son has bipolar disorder, ADHD, OCD, and anxiety. The first time was hospitalized he was 17, and it was SSRIs
that did him in. He was on five to seven of them, in sequence (for the OCD), and finally after doing some reading
online written by people with children with bipolar disorder, it came to light that many with BP do worse with the SSRI's.
They send him skyrocketing into mania in very short order (like, 2 days). That entire hospitalization nightmare at Sheppard
Pratt is a whole saga unto itself, but that's not my concern right at the moment.

He didn't need any other hospitalization for 13 years. He had been in the process of getting off Depakote, which added
200 lbs to his 7' frame, and it was rough at times as they kept trying different medications.

Three years ago in April, he had to go to the hospital. They put him on lamictal, which also turned into a bad choice. Fortunately
my son is very good at monitoring his own responses to various meds, and usually with a tip-off from me that he needs a med tweak
he sees his doc and gets it done.

He was on the lamictal for a year and a half, and during that time had another horrible problem in April again with mania, and I had
to call the police for his own safety. He figured out after that, with discussion with his doctor, that he really doesn't suffer from
depression seriously except when he's been given an anti-depressant to quell the mania, and that lamictal was really giving him some serious anger issues (ergo the hospitalization last year). When my son told his regular doctor about the lamictal, his doctor replied, to our shock, yes that doc at the hospital just prescribes that garbage to everyone who comes in. He went on the trileptal last year, and has been doing better than ever in his life (girl friend is a miracle and that helps too). Problem is that he has also had serious weight gain again, maybe due to the trileptal. And so, with that weight gain, they might well need to up his dose of the tripleptal. He's often had to do that with weight gains (and the opposite with losses) over the course of his life. But the hospital shrinks don't ask anything. They just take all his meds out for days and then do whatever they feel like. It is really horrendous, and makes him think many times over before seeking emergency assistance.

So is this SOP, does anyone know, to strip someone of his entire med routine for almost 48 hours? This is barbaric to me.
Appreciate any info I can get. If this is hospital ineptitude, I need to write some letters to a number of people until I get a response. So very many people in that hospital in that city have only a social worker to advocate for them, and the social workers are so overburdened, I don't know how they even remember anyone's names. If my son has experienced this at least twice in the past 16 months, I'm betting other patients have to. Just that no one bothers to speak up for them.

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I have no idea, but perhaps you should talk to his doctor. CaliforniaPeggy Aug 2015 #1
Hi Peggy. The problem is that in the hospital, 'his' doctor has no say and is never consulted. DebJ Aug 2015 #2
I am so sorry to hear this. What a mess. CaliforniaPeggy Aug 2015 #3
No, this is a very one-off experience steve2470 Aug 2015 #4
thank you so much steve DebJ Aug 2015 #8
Steve, I'm going to contact hospital admin regarding what I wrote DebJ Aug 2015 #13
sounds good steve2470 Aug 2015 #14
That's not been my experience. Tobin S. Aug 2015 #5
Sounds like malpractice to me, elleng Aug 2015 #6
sounds extremely dangerous to me. and as others have said- malpractice. mopinko Aug 2015 #7
Thanks mopinko. Yep, warrior mom. Someone has to be, because people needing this type DebJ Aug 2015 #12
The hospital took my psych meds Peace Seeker Aug 2015 #9
Same for you Annette. DebJ Aug 2015 #10
Thank you for all the support. Here is an update, and some lessons learned. DebJ Aug 2015 #11
on my phone. will write more later, but mopinko Aug 2015 #15
your posts sounds like something from 100 years ago. mopinko Aug 2015 #16
...not 100 years sadly... not even half a century... not even a decade in some places. hunter Aug 2015 #18
Update: Bad news. He went horribly manic, just like I said he would. DebJ Aug 2015 #17
. hunter Aug 2015 #19
well, when it takes that long you know your ekg was fine. mopinko Aug 2015 #20
He has an appointment with his regular guy the 31st. DebJ Aug 2015 #22
Something is terribly wrong with this hospital (gross medical malpractice and incompetence) steve2470 Aug 2015 #21
Thanks Steve. I did take some action today, actually. DebJ Aug 2015 #23
may I ask about the current status ? steve2470 Sep 2015 #24
Hi Steve. Thanks for asking. DebJ Sep 2015 #25
Yes and no. Act_of_Reparation Nov 2015 #26
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