About my official SS disability

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8. It is a long struggle and can be compounded my misdiagnosing

We have a history of it. Our granddaughter was misdiagnosed for years when younger (ADHD), later corrected to autism. I believe I am autistic, but have never been tested for it, recognize many of the symptoms and struggled with many things my entire life. Our son (temporal lobe epilepsy) also misdiagnosed early on (ADHD). We believe also undiagnosed autistic. It is a daily struggle for so many, and the 'System' makes it so difficult to get the proper diagnosis. Then the battle for disability and treatment. And once you have traversed that nightmare you have to be careful so as not to jeopardize your status. The constant battle to just maintain your status continues if you are in a red state. Coming out the other end of that gauntlet can so easily leave one beaten down, depressed and spent with feelings of worthlessness and self-loathing. Do not let others define who you are, keep up the good fight and never forget that you are worth it.