I think I am developing additional autoimmune issues and it's not fun

[FirstLight]

I've had psoriatic arthritis for years and I'm supposedly in remission but my body has decided to rebel yet again. I think I've had inflammatory bowel issues probably for years as well but I wasn't paying attention because I was too busy drinking which probably made things worse and now I'm heading into 2 years of being sober and I think my body and my age just caught up with me.

I'd actually been moving away from eating meat and eating more a fake meat products and chicken. And last night I had a frozen hamburger patty and my gut is in knots! Even 24 hours later, and I don't even think it has to do with 💩, it just feels like somebody is scraping the inside of my intestines with a comb or something it hurts. I'm also feeling pretty lethargic today like I just don't have the oomph to do anything but it's hard to have when you're hurting too.
Years ago they tested me for celiac and it came back negative but I bet you that might have turned on me too.

My kid just got diagnosed / tested positive for a very rare periodontal EDS as well so now I've been referred to the geneticist to have that done.

I'm just tired of feeling sick and tired right now 🥺
I just put some rice in the cooker and I'm going to make a scrambled egg and eat that with it. I was going to go out and have lunch earlier to celebrate my dad's birthday and now I just feel like shit 😢😭

[Walleye]

1. So sorry. I hope you can find some treatment that helps.

[Karadeniz]

2. Were winding down here....definitely not fun !

[slightlv]

3. I've got Fibro, and I also have episodic flares of Lupus.

Immune Deficiencies make life horribly hard, doubly so when you have multiples (which I discovered isn't a rare thing). I empathize with you; I'm down to my last 6 pain pills to last til the end of the month... obviously that's not gonna work. I can never get my body to cooperate to make it that long. So, I try to get as much done while I have my pills, because the last week or so will be spent in bed. If only I had someone to cook supper during those times. I worry about hubs not getting enough to eat. Before old age hit us, he couldn't boil water. Now? I'm afraid the kitchen would go up in flames and STILL the water wouldn't boil! (sigh)

[FirstLight]

4. yeah, I live alone and sometimes I can't even handle the ctas..

I had nightmares last night of not only having to work in a RETAIL job, but being late because my leg wouldn't work so I couldn't fdrive, AND they put me to work on the floor in a wheelchair! Thoselatent fears of losing healthcare are still inmy psyche obviously... If I ever lost my medicine (the one that keeps me in remission is literally $10K PER SHOT!) I don't think I would want to remain alive...

Ive had sever night sweats the past 2 nights,digestion is whack, and my body just feels OFF Don't see the Rheumy till next month, and I don't even know when or if I will hear from the geneticist anytime soon...for all I know it could get denied.

I've been doing SO well too... and made it through some of the hardest emotional and gut wrenching LIFE stuff these past mnths... fo my body to decide to crap out NOW is so dicouraging. and really makes me feel like a victim in my own skin.it's just so fucking UNFAIR!! "I'm doin the work, ya know...I'm taing the baby steps" as Bob would say ( bill murray, what about bob)

I've already cried three times this morning... including now. and I only had my first sip of coffee a minute ago
What a fuckin day.

[slightlv]

5. Oh hon. I know the despair

I've barely been out of bed for two days. I just try to knock myself out and sleep for the most part. My hubby and I always said we were the flip sides of the same coin. True to form his body is holding up better than mine, but he's losing it dementia wise. Together we almost make up one whole person. One of the services I wish was still available was the Meals on Wheels. I could sure use it now.

The blanket I got from Amazon is called the inHand Cooling Blanket. The price was 39.99. Sold by KK Home Fashion, fulfilled by Amazon.

I had a really bad night last night, too. A lot of pain, a lot of willing myself to wait for morning for a pain pill. It would have been one of those nights I'd have woke up drenched looking for a towel to lay across the bottom sheet. Amazingly tho I slept fitfully... like crap... not once did I wake up sweating. I don't know how this thing works or if it'll do the trick for everyone but it's proven itself by me.

I suggest this blanket only because it worked for me. With comments and advise being questionable anymore, I value words coming from someone I know Strange coming from one on a forum. But I consider us all friends here... and lord knows we look out for each other!

One thing I have to get use to with this blanket it has no heft. I'm one who feels safe with something heavy over me. This blankets not that, but it keeps me from sweating which I like. The cats like it too, so they've become my safety blankets

Hang in there. And if u ever need to reach out in frustration feel free to message me. Growing old is hard enough without the additional crisis of chronic disease and pain so many of us are bearing!