Anyone have normal pressure hydrocephalus? ** Good news! **

[alfredo]

Last edited Thu Sep 28, 2023, 03:56 PM - Edit history (1)

It’s a real pain. My sister has it too.

I have to hold on to a handrail when negotiating stairs.

** I have a consult with neurology coming soon. **

Not looking forward to brain surgery, but I endured cancer treatment, I can handle this

[elleng]

1. YES, and it is annoying.

Had surgery 1 month ago, fluid's draining but slowly. Very frustrating.

HI. Alfredo!!!

My 'saga' in Health.

[alfredo]

2. Just as long as I get my balance back

My sister had the surgery, and did ok.

[elleng]

3. Waiting and waiting for my balance.

Glad your sister did OK.

[alfredo]

4. I think my mom had the same issue

[elleng]

5. I suspect I've had it for much of my life,

but it's only become a burden within the past year. Actually diagnosed 15 years ago.

[alfredo]

7. Bending forward, looking up and turning my head can put me on the floor

[elleng]

8. Oh GEE!

I sure won't try THAT!

[alfredo]

9. Oh, it's loads of fun.

[alfredo]

10. I'm going to see about a shunt. Hope you see improvement

Is the shunt draining properly?
I fell last night from my magnetic feet.

Till then I’ll keep shuffling

?si=iFiupB-rGgWuS4SW

[elleng]

11. Thanks, I hope to see improvement too. Not much, at the moment.

ASSUMING it's draining properly, and avoiding 'scheduled' doc/surgeon appointment for this coming week (didn't know it was scheduled!) as going out of town for grand daughter's 7th birthday celebration.

Daughter told me may take 6 months.

[alfredo]

13. It really messes with my sleep. If I turn my head the wrong way,

I get dizzy with a touch of nausea. I can’t sleep on my side without risking dizzy spells

[elleng]

15. That's NOT good.

Have reliable docs? My neurologist @ Johns Hopkins specializes in hydrocephalus.

[alfredo]

16. I have the VA and they will refer me if needed

[alfredo]

6. Mine became bad after radiation therapy.

They told me I had some brain damage from radiation and chemo

I’m alive and cancer free. As we used to say “ if you want to play, you gotta pay.”
Ain’t nuttin free.

[elleng]

12. Radiation would/could do it, I guess.

Cured friend, with prostate cancer.

[alfredo]

14. It beat cancer, but left me with long lasting side effects,